Just for noting all three of these ideas are things that relate to my life and that I would like to dive into to help both myself and others understand the syndrome(s).
1. Alzheimer's United
This organization helps families and family members deal with a person with Alzheimer's Syndrome. This organization will help people cope with the illness that has afflicted they're elderly relatives. The idea behind it is support from more than just family, but a group of people who are going through the exact same ordeal. To share ideas and information that can help lessen the pain and provide support. As a group they can come together to address issues that they have noticed, similar symptoms, and how to go about fixing them with the research that is out there.Alzheimer's Association provides information about how to get help and treatment, but does little to give aid to the families of the illness.
2. Osteogenesis Imperfecta (Brittle bone syndrome)
This organization will help people with Osteogenesis to promote their own awareness as well as creating their own social networking. Most people with Osteogenesis cannot get around easily because of the dangers the world poses to their fragile bodies. This organization is to help the people with all types of osteogenesis communicate towards each other. This will help them learn more about their disease and creating strong bonds with other members who may have had the same procedures. Also, the communication will help people talk about operations and how to be prepared to allow others to be come more confident when going to the ER.OI Foundation provides information about the illness. The foundation provides support groups but not on the online factor or large seminars.
3. Duaine's Syndrome (Type 1,2,3)
This Organization will be built to inform parents about the syndrome of eye known as Duaine's Syndrome. Duaine's Syndrome is a lack of nerve development in the eye or eyes of a child. This syndrome is known about, but there is no known organization for people with Duaine's syndrome. This organization will be formed to inform parents, teens, and children about the syndrome. Also, it will allow for communication and formation of groups so that people can talk about their adaptations of the illness and how they cope with it in every day living. This organization will help adults know the signs of what type of Duaine's their child has and how to watch it to make sure it is in check.